Understanding the Problem
- What is a learning disability?
- What are the types of learning disabilities?
- What causes learning disabilities?
- Are learning disabilities related to differences in the brain?
- How are learning disabilities first identified?
- How are learning disabilities formally diagnosed
- What are the education options?
- Is medication available?
- How do families learn to cope?
- Can learning disabilities be outgrown or cured?
- What aid does the Government offer?
- What hope does research offer?
- What are sources of information and support?
Susan is now in ninth grade and enjoys learning. She no longer believes she's retarded, and her use of words has improved. Susan has become a talented craftsperson and loves making clothes and furniture for her sister's dolls. Although she's still in a special education program, she is making slow but steady progress in reading and math.
Over the years, Wallace found he liked tinkering with cars and singing in the church choir. At church, he met a woman who knew about learning disabilities. She told him he could get help through his county social services office. Since then, Wallace has been working with a speech therapist, learning to articulate and notice differences in speech sounds. When he complains that he's too old to learn, his therapist reminds him, "It's never too late to work your good brain!" His state vocational rehabilitation office recently referred him to a job-training program. Today, at age 46, Wallace is starting night school to become an auto mechanic. He likes it because it's a hands-on program where he can learn by doing.
Dennis is now age 23. As he walks into the college job placement office, he smiles and shakes hands confidently. After shuffling through a messy stack of papers, he finally hands his counselor a neatly typed resume. Although Dennis jiggles his foot and interrupts occasionally, he's clearly enthusiastic. He explains that because tape-recorded books and lectures got him through college, he'd like to sell electronics. Dennis says he'll also be getting married next year. He and his fiancee are concerned that their children also will have LD. "But we'll just have to watch and get help early--a lot earlier than I did!"
Even though most people don't outgrow their brain dysfunction, people do learn to adapt and live fulfilling lives. Dennis, Susan, and Wallace made a life for themselves--not by being cured, but by developing their personal strengths. Like Dennis' tape-recorded books and lectures, or Wallace's hands-on auto mechanics class, they found alternative ways to learn. And like Susan's crafts or Wallace's singing, they found ways to enjoy their other talents.
Even though a learning disability doesn't disappear, given the right types of educational experiences, people have a remarkable ability to learn. The brain's flexibility to learn new skills is probably greatest in young children and may diminish somewhat after puberty. This is why early intervention is so important. Nevertheless, we retain the ability to learn throughout our lives.
Even though learning disabilities can't be cured, there is still cause for hope. Because certain learning problems reflect delayed development, many children do eventually catch up. Of the speech and language disorders, children who have an articulation or an expressive language disorder are the least likely to have long-term problems. Despite initial delays, most children do learn to speak.
For people with dyslexia, the outlook is mixed. But an appropriate remedial reading program can help learners make great strides.
With age, and appropriate help from parents and clinicians, children with ADHD become better able to suppress their hyperactivity and to channel it into more socially acceptable behaviors. As with Dennis, the problem may take less disruptive forms, such as fidgeting.
Can an adult be helped? For example, can an adult with dyslexia still learn to read? In many cases, the answer is yes. It may not come as easily as for a child. It may take more time and more repetition, and it may even take more diverse teaching methods. But we know more about reading and about adult learning than ever before. We know that adults have a wealth of life experience to build on as they learn. And because adults choose to learn, they do so with a determination that most children don't have. A variety of literacy and adult education programs sponsored by libraries, public schools, and community colleges are available to help adults develop skills in reading, writing, and math. Some of these programs, as well as private and nonprofit tutoring and learning centers, provide appropriate programs for adults with LD.
As of 1981, people with learning disabilities came under the protection of laws originally designed to protect the rights of people with mobility handicaps. More recent Federal laws specifically guarantee equal opportunity and raise the level of services to people with disabilities. Once a learning disability is identified, children are guaranteed a free public education specifically designed around their individual needs. Adolescents with disabilities can receive practical assistance and extra training to help make the transition to jobs and independent living. Adults have access to job training and technology that open new doors of opportunity.
Increased Services, Equal Opportunity
The Individuals with Disabilities Education Act of 1990 assures a public education to school-aged children with diagnosed learning disabilities. Under this act, public schools are required to design and implement an Individualized Educational Program tailored to each child's specific needs. The 1991 Individuals with Disabilities Education Act extended services to developmentally delayed children down to age 5. This law makes it possible for young children to receive help even before they begin school.
Another law, the Americans with Disabilities Act of 1990, guarantees equal employment opportunity for people with learning disabilities and protects disabled workers against job discrimination. Employers may not consider the learning disability when selecting among job applicants. Employers must also make "reasonable accommodations" to help workers who have handicaps do their job. Such accommodations may include shifting job responsibilities, modifying equipment, or adjusting work schedules.
By law, publicly funded colleges and universities must also remove barriers that keep out disabled students. As a result, many colleges now recruit and work with students with learning disabilities to make it possible for them to attend. Depending on the student's areas of difficulty, this help may include providing recorded books and lectures, providing an isolated area to take tests, or allowing a student to tape record rather than write reports. Students with learning disabilities can arrange to take college entrance exams orally or in isolated rooms free from distraction. Many colleges are creating special programs to specifically accommodate these students.
Programs like these made it possible for Dennis to attend and succeed in college. The HEATH Resource Center, sponsored by the American Council on Education, assists students with learning disabilities to identify appropriate colleges and universities. Information on the HEATH center and related organizations appears at the end of this brochure.
Public Agency Support
Effective service agencies are also in place to assist people of all ages. Each state department of education can help parents identify the requirements and the process for getting special education services for their child. Other agencies serve disabled infants and preschool children. Still others offer mental health and counseling services. The National Information Center for Children and Youth can provide referrals to appropriate local resources and state agencies.
Counselors at each state department of vocational rehabilitation serve the employment needs of adolescents and adults with learning disabilities. They can refer adults to free or subsidized health care, counseling, and high school equivalence (GED) programs. They can assist in arranging for job training that sidesteps the disability. For example, a vocational counselor helped Wallace identify his aptitude for car repair. To work around Wallace's language problems, the counselor helped locate a job-training program that teaches through demonstrations and active practice rather than lectures.
State departments of vocational rehabilitation can also assist in finding special equipment that can make it possible for disabled individuals to receive training, retain a job, or live on their own. For example, because Dennis couldn't read the electronics manuals in his new job, a vocational rehabilitation counselor helped him locate and purchase a special computer that reads books aloud.
Finally, state-run protection and advocacy agencies and client assistance programs serve to protect these fights. As experts on the laws, they offer legal assistance, as well as information about local health, housing, and social services.
Sophisticated brain imaging technology is now making it possible to directly observe the brain at work and to detect subtle malfunctions that could never be seen before. Other techniques allow scientists to study the points of contact among brain cells and the ways signals are transmitted from cell to cell.
With this array of technology, NIMH is conducting research to identify which parts of the brain are used during certain activities, such as reading. For example, researchers are comparing the brain processes of people with and without dyslexia as they read. Research of this kind may eventually associate portions of the brain with different reading problems.
Clinical research also continues to amass data on the causes of learning disorders. NIMH grantees at Yale are examining the brain structures of children with different combinations of learning disabilities. Such research will help identify differences in the nervous system of children with these related disorders. Eventually, scientists will know, for example, whether children who have both dyslexia and an attention disorder will benefit from the same treatment as dyslexic children without an attention disorder.
Studies of identical and fraternal twins are also being conducted. Identical twins have the same genetic makeup, while fraternal twins do not. By studying if learning disabilities are more likely to be shared by identical twins than fraternal twins, researchers hope to determine whether these disorders are influenced more by genetic or by environmental factors. One such study is being conducted by scientists funded by the National Institute of Child Health and Human Development. So far, the research indicates that genes may, in fact, influence the ability to sound out words.
Animal studies also are adding to our knowledge of learning disabilities in humans. Animal subjects make it possible to study some of the possible causes of LD in ways that can't be studied in humans. One NIMH grantee is researching the effects of barbiturates and other drugs that are sometimes prescribed during pregnancy. Another researcher discovered through animal studies that certain prenatal viruses can affect future learning. Research of this kind may someday pinpoint prenatal problems that can trigger specific disabilities and tell us how they can be prevented.
Animal research also allows the safety and effectiveness of experimental new drugs to be tested long before they can be tried on humans. One NIH-sponsored team is studying dogs to learn how new stimulant drugs that are similar to Ritalin act on the brain. Another is using mice to test a chemical that may counter memory loss.
This accumulation of data sets the stage for applied research. In the coming years, NIMH-sponsored research will focus on identifying the conditions that are required for learning and the best combination of instructional approaches for each child.
Piece by piece, using a myriad of research techniques and technologies, scientists are beginning to solve the puzzle. As research deepens our understanding, we approach a future where we can prevent certain brain and mental disorders, make valid diagnoses, and treat each effectively. This is the hope, mission, and vision of the National Institute of Mental Health.
Several publications, organizations, and support groups exist to help individuals, teachers, and families to understand and cope with learning disabilities. The following resources provide a good starting point for gaining insight, practical solutions, and support. Further information can be found at libraries and book stores.
- Books for Children and Teens With Learning Disabilities
- Fisher, G., and Cummings, R. The Survival Guide for Kids with LD. Minneapolis: Free Spirit Publishing, 1990. (Also available on cassette)
- Gehret, J. Learning Disabilities and the Don't-Give-Up-Kid. Fairport, NY: Verbal Images Press, 1990.
- Janover, C. Josh: A Boy with Dyslexia. Burlington, VT: Waterfront Books, 1988.
- Landau, E. Dyslexia. New York: Franklin Watts Publishing Co., 1991.
- Marek, M. Different, Not Dumb. New York: Franklin Watts Publishing Co., 1985.
- Levine, M. Keeping A Head in School: A Student's Book about Learning Abilities and Learning Disorders. Cambridge, MA: Educators Publishing Services, Inc., 1990.
Books for Adults With Learning Disabilities
- Adelman, P., and Wren, C. Learning Disabilities, Graduate School, and Careers: The Student's Perspective. Lake Forest, IL: Learning Opportunities Program, Barat College, 1990.
- Cordoni, B. Living with a Learning Disability. Carbondale, IL: Southern Illinois University Press, 1987.
- Kravets, M., and Wax, I. The K&W Guide: Colleges and the Learning Disabled Student. New York: Harper Collins Publishers, 1992.
- Magnum, C., and Strichard, S., eds. Colleges with Programs for Students with Learning Disabilities. Princeton, NJ: Petersons Guides, 1992.
Books for Parents
- Greene, L. Learning Disabilities and Your Child: A Survival Handbook. New York: Fawcett Columbine, 1987.
- Novick, B., and Arnold, M. Why Is My Child Having Trouble in School? New York: Villard Books, 1991.
- Silver, L. The Misunderstood Child: A Guide for Parents of Children with Learning Disabilities: 2d ed. Blue Ridge Summit, PA: Tab Books, 1992.
- Silver, L. Dr. Silver's Advice to Parents on Attention-Deficit Hyperactivity Disorder. Washington, DC: American Psychiatric Press, 1993.
- Vail, P. Smart Kids with School Problems. New York: EP Dutton, 1987.
- Weiss, E. Mothers Talk About Learning Disabilities. New York: Prentice Hall Press, 1989.
Books and Pamphlets for Teachers and Specialists
- Adelman, P., and Wren, C. Learning Disabilities, Graduate School, and Careers. Lake Forest, Learning Opportunities Program, Barat College, 1990.
- Silver, L. ADHD: Attention Deficit-Hyperactivity Disorder, Booklet for Teachers. Summit, NJ: CIBA-GEIGY, 1989.
- Smith, S. Success Against the Odds: Strategies and Insights from the Learning Disabled. Los Angeles: Jeremy Tarcher, Inc., 1991.
- Wender, P. The Hyperactive Child, Adolescent, and Adult. Attention Disorder through the Lifespan. New York: Oxford University Press, 1987.
Related Pamphlets Available From NIH
- Facts About Dyslexia
- National Institute of Child Health and Human Development
- Building 31, Room 2A32
- 9000 Rockville Pike
- Bethesda, MD 20892 (301) 496-5133
- Developmental Speech and Language Disorders--Hope through Research
- National Institute on Deafness and Other Communicative Disorders
- P.O. Box 37777
- Washington, DC 20013 (800) 241-1044
- Back to Contents
Support Groups and Organizations
- American Speech-Language-Hearing Association
- 10801 Rockville Pike
- Rockville, MD 20852 (800) 638-8255
- Provides information on speech and language disorders, as well as referrals to certified speech-language therapists.
- Attention Deficit Information Network
- 475 Hillside Avenue
- Needham, MA 02194 (617) 455-9895
- Provides up-to-date information on current research, regional meetings. Offers aid in finding solutions to practical problems faced by adults and children with an attention disorder.
- Candlelighters Childhood Cancer Foundation
- 7910 Woodmont Avenue, Suite 460
- Bethesda, MD 20814 (800) 366-2223
- Provides information and support for children treated for cancer who later experience learning disabilities.
- Center for Mental Health Services
- Office of Consumer, Family, and Public Information
- 5600 Fishers Lane, Room 15-81
- Rockville, MD 20857 (301) 443-2792
- This new national center, a component of the U.S. Public Health Service, provides a range of information on mental health, treatment, and support services.
- Children with Attention Deficit Disorders (CHADD)
- 499 NW 70th Avenue, Suite 308
- Plantation, FL 33317 (305) 587-3700
- Runs support groups and publishes two newsletters concerning attention disorders for parents and professionals.
- Council for Exceptional Children
- 11920 Association Drive
- Reston, VA 22091 (703) 620-3660
- Provides publications for educators. Can also provide referral to ERIC Clearinghouse for Handicapped and Gifted Children.
- Federation of Families for Children's Mental Health
- 1021 Prince Street
- Alexandria, VA 22314 703) 684-7710
- Provides information, support, and referrals through federation chapters throughout the country. This national parent-run organization focuses on the needs of children with broad mental health problems.
- HEATH Resource Center
- American Council on Education
- 1 Dupont Circle, Suite 800
- Washington, DC 20036 (800) 544-3284
- A national clearinghouse on post-high school education for people with disabilities.
- Learning Disabilities Association of America
- 4156 Library Road
- Pittsburgh, PA 15234 (412) 341-8077
- Provides information and referral to state chapters, parent resources, and local support groups. Publishes news briefs and a professional journal.
- Library of Congress
- National Library Service for the Blind and Physically Handicapped
- 1291 Taylor Street, NW
- Washington, DC 20542 (202) 707-5100
- Publishes Talking Books and Reading Disabilities, a fact sheet outlining eligibility requirements for borrowing talking books.
- National Alliance for the Mentally Ill
- Children and Adolescents Network (NAMICAN)
- 2101 Wilson Boulevard, Suite 302
- Arlington, VA 22201 (800) 950-NAMI
- Provides support to families through personal contact and support meetings. Provides education regarding coping strategies; reading material; and information about what works--and what doesn't.
- National Association of Private Schools for Exceptional Children
- 1522 K Street, NW Suite 1032
- Washington, DC 20005 (202) 408-3338
- Provides referrals to private special education programs.
- National Center for Learning Disabilities
- 381 Park Avenue South, Suite 1420
- New York, NY 10016 (212) 687-7211
- Provides referrals and resources. Publishes "Their World" magazine describing true stories on ways children and adults cope with LD.
- National Information Center for Children and Youth with Disabilities (NICHCY)
- P.O. Box 1492
- Washington, DC 20013-1492
- (202) 884-8200
- E-mail: firstname.lastname@example.org
- URL: http://www.nichcy.org
- Provides personal responses to questions on disability issues, referrals to other organizations and agencies, information searches of NICHCY databases and library, technical assistance to parent and professionals, as well as numerous publications, many of which are free of charge.
- Orton Dyslexia Society
- Chester Building, Suite 382
- 8600 LaSalle Road
- Baltimore, MD 21286-2044 (410) 296-0232
Answers individual questions on reading disability. Provides information and referrals to local resources.
To arrange for special college entrance testing for LD adults, contact:
- ACT Special Testing (319) 337-1332
- SAT Scholastic Aptitude Test (609) 771-7137
- GED (202) 939-9490
MESSAGE FROM THE NATIONAL INSTITUTE OF MENTAL HEALTH
Research conducted and supported by the National Institute of Mental Health (NIMH) brings hope to millions of people who suffer from mental illness and to their families and friends. In many years of work with animals as well as human subjects, researchers have advanced our understanding of the brain and vastly expanded the capability of mental health professionals to diagnose, treat, and prevent mental and brain disorders.
Now, in the 1990s, which the President and Congress have declared "The Decade of the Brain," we stand at the threshold of a new era in brain and behavioral sciences. Through research we will learn even more about mental disorders such as depression, manic-depressive illness, schizophrenia, panic disorder, and obsessive-compulsive disorder. And we will be able to use this knowledge to develop new therapies that can help more people overcome mental illness.
The National Institute of Mental Health is part of the National Institutes of Health (NIH), the Federal Government's primary agency for biomedical and behavioral research. NIH is a component of the U.S. Department of Health and Human Services.
This booklet was written by Sharyn Neuwirth, M.Ed., an education writer and instructional designer in Silver Spring, MD. Scientific information and review was provided by NIMH staff members L. Eugene Arnold, M.D.; F. Xavier Castellanos, M.D.; and Judith Rumsey, Ph.D. Also providing review and assistance were Marcia Henry, Ph.D., Orton Dyslexia Society; Reid Lyon, Ph.D., National Institute of Child Health and Human Development; Jean Petersen, Learning Disabilities Association; and Larry B. Silver, M.D., Georgetown University. Editorial direction was provided by Lynn J. Cave, NIMH.
All material in this publication is free of copyright restrictions and may be copied, reproduced, or duplicated without permission from NIMH; citation of the source is appreciated.
- U.S. Department of Health and Human Services
- Public Health Service
- National Institutes of Health
- National Institute of Mental Health
- NIH Publication No. 93-3611
- Printed 1993
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This page was last updated: 6/01/1999.